Thursday 3 June 2010

The Past 5 Months (not so great)

After Christmas I started to get pain in my jaw but I have wisdom teeth forming so I was used to it. I think I had a mild case of TMJ which is like lock jaw where the joint swells a little making it hard to open your mouth wide at times. Anyway, I started to sleep on my back so I wouldn't sleep on my face at night making things worse. I started to complain about pain in my legs and shoulders which I just put down to sleeping funny.

As time passed (month or so) the pain and stiffness in my legs and arms got worse and I was having trouble getting up out of chairs/bed and walking was even slow at times.
I then started to get pins and needles in my hands and wrists which I thought was just RSI because I am always on a computer or playing xbox.

After 2 months we thought I should see a doctor as things really weren't improving and were clearly getting worse. I was ordered to have some blood tests which revealed I had some issues with inflammatory arthritis. It sounded insane as I am so young but its not unheard of.
With a lot more blood tests and an X-ray on my hands which by now had pretty much swollen and one was nearly unusable I was referred to a Rheumatologist.

I was told it would be a 6-9 month wait, but within 3 months i got a call for an appointment which seemed odd. Last week (now 5 months of suffering) I saw the specialist who confirmed that I have Rheumatoid Arthritis (RA) :(
I have it pretty bad, almost in every joint. Its rare in men and usually a lot worse than woman and that's why I was called in so fast after they saw my blood tests. Finally I was being listened to and getting the help I need. Right there and then they drained fluid from both my knees and injected me with a steroid.

If you treat RA aggressively within the first year of it showing up there is a chance of it going into remission for a while before surfacing at older age. Seeing that I am so young they want to try and give some quality of life back before I have to deal with old age. So my treatment will be weekly injections in my arm of a drug, 2 pills of another drug daily, physio and sessions in the pool.

Its going to be intense but by the end of Friday the steroid had already started to work wonders and over the weekend I can now open jars, dress myself and walk up stairs with no problem. I am in the best care now and I am 30lbs lighter as well because all the stress caused me to lose weight.

Its been a shit 5 months but finally I am getting some relief, I am not cured but I am being treated by the right people.

No comments:

Post a Comment